A rare or scary diagnosis.
A clearer next step.
You don’t have to figure it all out today. Tell us what happened. We’ll help you find the people to talk to and a place to start.
Start wherever you are.
A diagnosis, a question, or a few words is enough. We’ll take it from there, together.
Tell us what happenedYour story stays private. No account needed to start.
01
Your story comes first.
Share what you know, and what you need help with. You don’t need the medical terms.
02
A person, on your side.
A navigator will connect with you and help research the next step.
03
A path you can use.
People to contact, why they may fit, what to ask, and a next step if the first route doesn’t work.
We wished this
existed for us.
Named for our daughter Ivy. After a rare diagnosis and around 30 surgeries in her first year, we learned how hard it can be to find a path to the right care. We created Ivy’s Network to help other families take their next step.